Unlocking the power of registry data
Health data partnerships between registries and the medical technology industry can accelerate innovation
Healthcare is generating data at an unprecedented scale – by 2025, the global volume is expected to reach 10,800 exabytes. Yet, according to the World Economic Forum, 97% of that data remains unused.
Data from registries is valuable in providing clinicians with the information they need to determine the best treatments for their patients. Registry data is also important for medical research because it tracks the performance of treatments on specific subgroups of patients, for example people who have undergone spinal fusion surgery.
However, a critical stakeholder, the medical technology (medtech) industry, has largely been left out of this ecosystem due to a range of legal and technical challenges.
Sharing registry data with manufacturers, under secure, structured, and ethical frameworks, can dramatically enhance innovation, compliance, and patient outcomes.
This paper explores how registries support clinicians and researchers today, why medtech manufacturers need access to this data, and how a health data partnership model can unlock these benefits while safeguarding ethical, legal, and clinical integrity.
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EVIDENCE FOR IMPROVED TREATMENT OUTCOMES
NEC supports the secure collection and management of registry data to enable clinicians, providers, device manufacturers and regulatory authorities to monitor and report on the safety and effectiveness of treatments.
Our data services enable patient care teams to compare treatments and outcomes so they can choose the best option for patients. They also offer offer implant-specific reports to manufacturers, helping them to track performance and understand opportunities.
case studies & Related insights
Discover the latest news, insight and events from across registries.
The vital evidence needed to improve patient outcomes
Richard Armstrong, head of registries at NEC Software Solutions, examines how real-world evidence, underpinned by accurate and comprehensive information, would allow healthcare professionals, pharmaceutical and medical device companies to understand, at scale, what works best and for which patients.
How registries need good stakeholder engagement
The success or failure of a registry isn’t determined solely by the data it was built to hold. Experience has shown that when stakeholders see clear value in the functions the registry performs, and the outputs it generates, they are motivated to ensure accurate and complete data gets submitted at every stage.
The four principles of the Spine Tango Registry
Data security and accessibility make the difference for Europe’s leading spinal registry. The registry, run by EUROSPINE, helps surgeons, hospitals and medical device manufacturers evaluate treatments and improve outcomes for patients with spinal and neck injuries.